The results of a phenomenological qualitative study using photo voice to interview sibling/parent dyads to better understand the lived experience of being a sibling to a child with SNI will be discussed. Key findings will be highlighted, as well as take away points for providers in regards to how to best meet the needs of these siblings.

1. Advocate for the inclusion of Perinatal Palliative Care in multidisciplinary fetal care

2. Outline Goals of Care conversations in the prenatal period

3. Discuss the functional and therapeutic roles of creating a Perinatal Palliative Care Birth Plan

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Danielle Jonas is a social work researcher focused on pediatric palliative care and specifically the care of children with severe neurologic impairment and their families. She is currently a PhD student at New York University Silver School of Social Work. Danielle completed the interdisciplinary pediatric palliative care fellowship through Boston Children’s Hospital and the Dana Farber Cancer Institute in 2015, earned her MSW from Indiana University in 2014, and earned a BA in Psychology and History for Indiana University in 2012. She serves on the Social Work Hospice and Palliative Care Network (SWHPN) board and has presented nationally on various topics related to pediatric palliative care and the social work role within the field of pediatric palliative care. She has also co-authored several textbook chapters on topics such as Social Disparities in Pediatric Palliative Care and Bioethics in Pediatric Palliative Care Social Work. In addition to her academic work, Danielle currently conducts private practice psychotherapy and bereavement counseling for children, families and adults. She previously served as the pediatric palliative care social worker and bereavement coordinator at Children’s Hospital Los Angeles