Family caregivers are the foundation of the pediatric health care system. However, many gaps exist in the support that is available to caregivers, due to low visibility of their work and impact within the healthcare system. Family leaders and researchers from across the country have partnered to develop a national research agenda focused on improving the health care system for children and youth with special health care needs (CYSHCN). Their newly published article titled Understanding Caregiving and Caregivers: Supporting CYSHCN at Home, is one in an eight-part series to be published as a supplement to Academic Pediatrics.
In this webinar, the article’s authors will discuss the necessary and integral role of family caregiving, describe their study’s findings, and reflect on the implications of their recommendations. We suggest that attendees read the article prior to the webinar.
This work is led by the Children and Youth with Special Health Care Needs Research Network (CYSHCNet). CYSHCNet was founded in 2017 through a cooperative agreement with the Health Resources and Services Administration’s Maternal and Child Health Bureau.