Resources
Useful website for family leaders involved in the Children and Youth with Special Health Care Needs field.
Annie E. Casey Foundation: Evidence Based Leadership and A Framework for Effectively Partnering With Young People
Association of Maternal and Child Health Programs: Creating a Culture of Family Engagement
Arc is a national community-based organization advocating for and with people with intellectual and developmental disabilities
Becoming a Family Advocate and Telling Your Story With a Purpose: Family Advocacy Training Materials
Disability Rights Washington provides free services to people with disabilities
Early Childhood Parenting Curriculum: Launch an Early Childhood Parent Academy
Family to Family Network helps individuals with disabilities and their family members define and achieve success for themselves and their loved ones
Family Voices is a national family-led organization of families and friends of children and youth with special health care needs and disabilities
Family Voices of California: Project Leadership Training Manual
Generations United has a series of Racial Equity Toolkits Featuring Grandfamilies: American Indian & Alaska Native Grandfamilies; African American Grandfamilies; and Latino Grandfamilies.
Georgetown University’s Never Too Early: Moving Upstream to Prevent Juvenile Justice, Child Welfare, and Dual System Involvement.
Informing Families is a resource provided by the Washington State Developmental Disabilities Council
National Association of the Dual Diagnosed for those with intellectual disabilities and mental health needs
National Center for Complex Health and Social Needs and the Institute for Healthcare Improvement: Measuring Complexity Moving Toward Standardized Quality Measures for the Field of Complex Care
Northwest Health Law Advocates: Washington State Accountable Communities of Health Recommendations on Consumer Involvement in Regional Decision-making
Official Form for Application for Disability Insurance Benefits (SSA-16)
Official Form for Disability Report for Child (SSA-3820)
PACER Center: The Supplemental Security Income Application Process
Planning for Family Involvement: Planning Worksheet to incorporate family leaders into projects
RAISE Family Caregivers Act Initial Report to Congress
Relias: Creating a Trauma-Informed System of Care: Addressing Individuals, Professionals, and Organizations
Resources For Integrated Care: Tip Sheet on Using Person-Centered Language
Washington State Department of Commerce 2020 Agency Resource Book
Washington State Developmental Disabilities Council is a Federal-State partnership working to plan for and with people with developmental disabilities