Conversations Matter: pediatric Advance Care Planning (pACP) and Shared Decision Making with Adolescents Living with a Serious Illness

Calendar
Register
When:
August 18, 2022 @ 12:00 pm – 1:00 pm
2022-08-18T12:00:00-07:00
2022-08-18T13:00:00-07:00
Where:
online
Cost:
Free
event webinar
Conversations Matter: pediatric Advance Care Planning (pACP) and Shared Decision Making with Adolescents Living with a Serious Illness @ online

This presentation will describe how to conduct pediatric advance care planning safely, the best timing from the adolescent patient’s perspective, and the immediate and one-year outcomes from participating in the FACE-HIV and FACE-TC randomized clinical trials

Maureen Lyon | Children’s National Medical Center & The George Washington University School of Medicine and Health Sciences

This presentation will describe how to conduct pediatric advance care planning safely, the best timing from the adolescent patient’s perspective, and the immediate and one-year outcomes from participating in the FACE-HIV and FACE-TC randomized clinical trials. The primary outcome is the family’s accurate understanding of their adolescent’s end-of-life treatment preferences. Secondary outcomes include participant satisfaction, willingness to limit treatments in some end-of-life situations, and families’ appraisal of their caregiving. The intersectionality of gender and poverty on study outcomes will also be presented. Implications and Next Steps will be discussed.

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Learning Objectives

1. Describe methods for conducting pediatric Advance Care Planning (pACP) safely

2. Describe the FAmily CEntered (FACE) pediatric Advance Care Planning (pACP) intervention for adolescents with HIV/AIDS & Cancer

3. Describe the immediate and long-term efficacy of FACE pACP on patient and family-reported outcomes, as well as documentation in the electronic health record